Sources of Support and information for People with Dementia and Carers
Alzheimer’s Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.
Alzheimer’s Society Helpline:0845 300 0336
8.30am to 6.30pm Monday to Friday
Address: Alzheimer’s Society
58 St Katharine’s Way
London E1W 1LB
Scotland’s leading dementia charity that provides services and campaigns to help people with dementia and their families and carers.
Alzheimer Scotland 24hr Helpline: 0808 808 3000
Address: Alzheimer Scotland
22 Drumsheugh Gardens
Is a charitable organisation which runs the Admiral Nurse service for people with dementia and their carers, and runs the Uniting Carers service.
Dementia Helpline: 0800 888 6788
Address: Dementia UK
356 Holloway Road
Young Dementia UK
Young Dementia UK works directly with younger people with dementia and their family and friends in Oxfordshire and its borders. Exploring new ways to reach out to younger people with dementia. Previously known as The Clive Project.
YoungDementia UK: 01993 776295
PO Box 315
Oxfordshire OX28 1ZN
Pick’s Disease Support Group
For carers of the temporal dementia: Pick’s disease, frontal lobe degeneration, dementia with Lewy bodies, corticobasal degeneration and alcohol related dementia.
Pick’s Disease Support Group Annual Seminar in London on 9 March 2011: download the programme and registration information.
Alzheimer’s Disease International
An umbrella organisation of Alzheimer associations that aims to help establish and strengthen Alzheimer associations throughout the world, and raise global awareness about Alzheimer’s disease and all other causes of dementia.
Alzheimer’s Disease International: 020 798 10880
Address: Alzheimer’s Disease International
64 Great Suffolk Street
A social enterprise that offers training, research and consultancy, income from which provides Dementia Adventures from park walks to sailing holidays.
Dementia Adventure: 01245 237548
Address: Dementia Adventure CIC
Old Park Farm
The leading campaigning, policy and information organisation for carers.
Carers advice line: 0808 808 7777 Wed-Thu 10-12/2-4pm
Carers UK: 020 7378 4999
Address: 20 Great Dover Street
Carers Northern Ireland: 028 9043 9843
Address: 58 Howard Street
Carers Scotland: 0141 445 3070
Address: The Cottage
21 Pearce Street
Carers Wales: 029 2081 1370
Address: River House
Counsel and Care
Is a charity giving advice and information to older people, their relatives and carers across the UK.
Counsel and Care: 0845 300 7585 Mon – Fri, 10am-4pm except Wednesdays: 10am-1pm
Address: Twyman House
16 Bonny Street
The Care Quality Commission (CQC)
Is the independent regulator of all health and adult social care in England. Their aim is to make sure better care is provided for everyone, whether that’s in hospital, in care homes, in people’s own homes, or elsewhere.
The Care Quality Commission (CQC): 03000 616161
Address: Care Quality Commission National Correspondence
Newcastle upon Tyne
Public Guardianship Office
Is the administrative arm of the Court of Protection and an Executive Agency within the Lord Chancellor’s Department.
Public Guardianship Office: 0300 456 0300
Mon-Fri 9am-5pm (Wed 10am-5pm)
Address: Office of the Public Guardian
PO Box 15118
Parliamentary and Health Services Ombudsman
This ombudsman makes final decisions on complaints that have not been resolved by the NHS in England.
Customer Helpline: 0345 015 4033
Local Government Ombudsman
This ombudsman makes final decisions about adult social care providers and councils.
LGO Helpline: 0300 061 0614
Address: The Local Government Ombudsman
PO Box 4771
Coventry CV4 0EH
Offer a searchable database of registered care homes in the UK. It is a commercial site.
Better Caring: 0845 450 0350
Offering information, advice and support for carers. www.nhs.uk/carersdirect
The trust exists to make it easier for carers to cope by providing information, support and practical help to carers. It was formed from the merger of the Princess Royal Trust for Carers and Crossroads Care.
Cross roads: 0844 800 4361
Relatives and Residents Association
Offers practical and emotional support to relatives whose family member has entered residential care.
Relatives and Residents Association
020 7359 8136
Mon- Fri 9.30-4.30
The United Kingdom Home Care Association (UKCHA)
Is an association of providers of care at home with a code of practice.
UKCHA: 020 8288 5291
SPECAL (Specialized Early Care for Alzheimer’s)
A charitable organisation with an innovative approach to the care of people with Alzheimer’s, offering a very different way to managing the disease for both for the person with dementia and their families. www.specal.co.uk
Is a multisensory stimulation technique developed specifically for people with dementia. Sonas aPc is a registered charity that provides training in the Sonas technique. www.sonasapc.ie
The counselling Directory is a free, confidential service that aims to connect those in distress to a qualified/registered counsellor or psychotherapist. www.counselling-directory.org.uk
The dementia web dementia information resource for Kent and Medway – a detailed website with extensive information and advice about dementia. www.dementiawebkentandmedway.org.uk.
Bupa Talking Toolkit
Bupa have launched a guide for carers and family members on how to keep communicating with a loved one with dementia. You can download the guide from their website.
Association for Dementia Studies
The Association for Dementia Studies (ADS) was established in 2009 at the University of Worcester under the leadership of Professor Dawn Brooker. Our aim is to make a substantial contribution to building evidence-based practical ways of working with people living with dementia and their families that enables them to live well. We do this primarily through research, education and scholarship.