Sources of Support and information for People with Dementia and Carers
Alzheimer’s Society
Alzheimer’s Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.
Alzheimer’s Society Helpline:0845 300 0336
8.30am to 6.30pm Monday to Friday
Website: www.alzheimers.org.uk
Email: enquiries@alzheimers.org.uk
Address: Alzheimer’s Society
Devon House
58 St Katharine’s Way
London E1W 1LB
Alzheimer Scotland
Scotland’s leading dementia charity that provides services and campaigns to help people with dementia and their families and carers.
Alzheimer Scotland 24hr Helpline: 0808 808 3000
Website: www.alzscot.org
Email: alzheimer@alzscot.org
Address: Alzheimer Scotland
22 Drumsheugh Gardens
Edinburgh
EH3 7RN
Dementia UK
Is a charitable organisation which runs the Admiral Nurse service for people with dementia and their carers, and runs the Uniting Carers service.
Dementia Helpline: 0800 888 6788
Website: www.dementiauk.org
Email: info@dementiauk.org
Address: Dementia UK
Second Floor
356 Holloway Road
London
N7 6PA
Young Dementia UK
Young Dementia UK works directly with younger people with dementia and their family and friends in Oxfordshire and its borders. Exploring new ways to reach out to younger people with dementia. Previously known as The Clive Project.
YoungDementia UK: 01993 776295
Website: www.youngdementiauk.org
Email: mail@youngdementiauk.org
Address:
YoungDementia UK
PO Box 315
Witney
Oxfordshire OX28 1ZN
Pick’s Disease Support Group
For carers of the temporal dementia: Pick’s disease, frontal lobe degeneration, dementia with Lewy bodies, corticobasal degeneration and alcohol related dementia.
Website: www.pdsg.org.uk
Pick’s Disease Support Group Annual Seminar in London on 9 March 2011: download the programme and registration information.
Alzheimer’s Disease International
An umbrella organisation of Alzheimer associations that aims to help establish and strengthen Alzheimer associations throughout the world, and raise global awareness about Alzheimer’s disease and all other causes of dementia.
Alzheimer’s Disease International: 020 798 10880
Website: www.alz.co.uk
Email: info@alz.co.uk
Address: Alzheimer’s Disease International
64 Great Suffolk Street
London
SE1 0BL
Dementia Adventure
A social enterprise that offers training, research and consultancy, income from which provides Dementia Adventures from park walks to sailing holidays.
Dementia Adventure: 01245 237548
Website: www.dementiaadventure.co.uk
Address: Dementia Adventure CIC
Unit 11
Old Park Farm
Main Road
Ford End
Essex
CM3 1LN
Carers UK
The leading campaigning, policy and information organisation for carers.
Carers advice line: 0808 808 7777 Wed-Thu 10-12/2-4pm
Email: adviceline@carersuk.org
Carers UK: 020 7378 4999
Website: www.carersuk.org
Email: info@carersuk.org
Address: 20 Great Dover Street
London
SE1 4LX
Carers Northern Ireland: 028 9043 9843
Website:www.carersni.org
Email: info@carersni.org
Address: 58 Howard Street
Belfast
BT1 6PJ
Carers Scotland: 0141 445 3070
Website: www.carerscotland.org
Email: info@carerscotland.org
Address: The Cottage
21 Pearce Street
Glasgow
G51 3UT
Carers Wales: 029 2081 1370
Website: www.carerswales.org
Email: info@carerswales.org
Address: River House
Ynsbridge Court
Gwaelod-y-Garth
Cardiff
CF15 9SS
Counsel and Care
Is a charity giving advice and information to older people, their relatives and carers across the UK.
Counsel and Care: 0845 300 7585 Mon – Fri, 10am-4pm except Wednesdays: 10am-1pm
Website: www.counselandcare.org.uk
Email: advice@counselandcare.org.uk
Address: Twyman House
16 Bonny Street
London
NW1 9PG
The Care Quality Commission (CQC)
Is the independent regulator of all health and adult social care in England. Their aim is to make sure better care is provided for everyone, whether that’s in hospital, in care homes, in people’s own homes, or elsewhere.
The Care Quality Commission (CQC): 03000 616161
Website: www.cqc.org.uk
Email: enquiries@cqc.org.uk
Address: Care Quality Commission National Correspondence
Citygate
Gallowgate
Newcastle upon Tyne
NE1 4PA
Public Guardianship Office
Is the administrative arm of the Court of Protection and an Executive Agency within the Lord Chancellor’s Department.
Public Guardianship Office: 0300 456 0300
Mon-Fri 9am-5pm (Wed 10am-5pm)
Website: www.guardianship.gov.uk
Email: customerservices@publicguardian.gsi.gov.uk
Address: Office of the Public Guardian
PO Box 15118
Birmingham
B16 6GX
Parliamentary and Health Services Ombudsman
This ombudsman makes final decisions on complaints that have not been resolved by the NHS in England.
Customer Helpline: 0345 015 4033
Website: http://www.ombudsman.org.uk/
Local Government Ombudsman
This ombudsman makes final decisions about adult social care providers and councils.
LGO Helpline: 0300 061 0614
Website: http://www.lgo.org.uk/
Address: The Local Government Ombudsman
PO Box 4771
Coventry CV4 0EH
Better Caring
Offer a searchable database of registered care homes in the UK. It is a commercial site.
Better Caring: 0845 450 0350
Website: http://www.bettercaring.com
Email: info@bettercaring.co.uk
Carers direct
Offering information, advice and support for carers. www.nhs.uk/carersdirect
Carers Trust
The trust exists to make it easier for carers to cope by providing information, support and practical help to carers. It was formed from the merger of the Princess Royal Trust for Carers and Crossroads Care.
Cross roads: 0844 800 4361
Website: www.carers.org
Email: info@carers.org
Relatives and Residents Association
Offers practical and emotional support to relatives whose family member has entered residential care.
Relatives and Residents Association
020 7359 8136
Mon- Fri 9.30-4.30
Website: www.relres.org
Email: advice@relres.org
The United Kingdom Home Care Association (UKCHA)
Is an association of providers of care at home with a code of practice.
UKCHA: 020 8288 5291
Website: www.ukhca.co.uk
Email: enquiries@ukhca.co.uk
SPECAL (Specialized Early Care for Alzheimer’s)
A charitable organisation with an innovative approach to the care of people with Alzheimer’s, offering a very different way to managing the disease for both for the person with dementia and their families. www.specal.co.uk
Sonas
Is a multisensory stimulation technique developed specifically for people with dementia. Sonas aPc is a registered charity that provides training in the Sonas technique. www.sonasapc.ie
Counselling Directory
The counselling Directory is a free, confidential service that aims to connect those in distress to a qualified/registered counsellor or psychotherapist. www.counselling-directory.org.uk
Dementia Web
The dementia web dementia information resource for Kent and Medway – a detailed website with extensive information and advice about dementia. www.dementiawebkentandmedway.org.uk.
Bupa Talking Toolkit
Bupa have launched a guide for carers and family members on how to keep communicating with a loved one with dementia. You can download the guide from their website.
Association for Dementia Studies
The Association for Dementia Studies (ADS) was established in 2009 at the University of Worcester under the leadership of Professor Dawn Brooker. Our aim is to make a substantial contribution to building evidence-based practical ways of working with people living with dementia and their families that enables them to live well. We do this primarily through research, education and scholarship.
Website